It is interesting to read it now, ten years later, and to see how much and how little things have changed, in public policy and in public and private genomics research. A summary of three selected chapters follows.
|Credit: Manam's photos, Flickr|
Erin D. Williams, in Chapter 7.2. Genetics and bioethics: the current state of affairs, p. 129-138, speaks of major bioethics issues such as informed consent, genetic counseling, handling of tissue samples and medical information, privacy and confidentiality. As well, Williams points to a need to improve accessibility in the U.S. health care system, and to the poverty of developing countries, who cannot afford to implement new genomic discoveries. She discusses developments in genetic testing, databanks and ownership of biological tissue specimens, gene therapy, DNA forensic analysis, genetically modified organism and other issues.
And in Chapter 8. Future of bioethics, health and the environment -- 8.1. Universality of bioethics in love, p. 144-146, Darryl Macer argues that love of life is the key source of bioethics. While it is not a measurable output, he sees it as being central to what he calls universal bioethics, and what we call today global bioethics. For him it is made up of a balance of principles: self-love (autonomy); love of others (justice); loving life (do no harm) and loving good (beneficence).
Fujiki, Norio; Sudo, Masakatsu; and Macer, Darryl, eds.
Bioethics and the Impact of Genomics in the 21st Century: Pharmacogenomics, DNA Polymorphism and Medical Genetics Services. Christchurch, New Zealand: Eubios Ethics Institute, 2001. [175 p. + 170 p.] en; jap